My Superhero’s Biggest Battle…

Aaron 

 

This is Aaron or as many people call him AJ. Before this all began he was typical 6-year-old boy. Well I wouldn’t say typical, for those who know him there is nothing “typical” about AJ. He has always been a inquisitive child that questions everything and not just in the normal, “Mom, where do babies come from?” questions, but I will get into his  amazing personality at a later time. He spent his days enjoying kindergarten, gymnastics, ice skating , pretending to be Spider-Man and jumping off of anything and everything. We always enjoyed weekend vacations, hours at parks, museums, city trips and most of all, summer time, and the beach.

On Sunday, March 30th, 2014 we spent the day ice skating with his Aunt Amanda, doing flips outside and spent the rest of the day playing Spider-Man.  Little did I know that within 24 hours, our world would take a complete 360. Now instead of him pretending I was his biggest “villain” and that his “Spider-Man powers” would save the day, his little body would actually be fighting the worst villain of all… CANCER!… to be exact Choroid Plexus Carcinoma, an extremely rare malignant brain tumor. 

I am creating this blog for many reasons. The main one being to gain awareness to his rare form of cancer.  I don’t want anyone else to feel alone, like we do at this moment.  Aaron is loved by so many people, the second everyone found out that he was in the hospital the phone calls, texts, baskets and presents have been coming in a constant flow. We are all very thankful for all the support and encouraging words and prayers. Everyone has been making this nightmare a tad bit easier to deal wit

Please scroll through this blog and celebrate each moment and memory we are making as Aaron fights his “biggest villain” of all.  

FYI- many of the foundations that help families/children in situations like this, require the child to have a homepage so people from all over can follow his journey and cheer him on! So please feel free to share his story to help spread awareness to his disease. 

 

 

 

In the next few days I will also be posting links to help support all of the amazing foundations that have reached out to us in the last few weeks. One place in specific that has been such a great help is the Ronald McDonald House. That place  is truly a blessing for all children and families they serve. If anyone chooses to donate, we ask that you make a donation is Aaron’s name.  If you have any question’s regarding donation’s please just leave a comment and I will try to get back as soon as possible.

Our Go Fund Me Linkhttp://www.gofundme.com/8eld6g

Ronald McDonald house-   https://www.rmhlongisland.org/donate

Friends of Karen. -https://secure.acceptiva.com/?cst=dd7578 (direct donation link) main site is http://www.FriendsofKaren.org

logohttp://www.cbtf.org/support-us/donate

36 comments

  1. Aaron you are a special kid who I adore you always make me laugh in the media center. I miss you and your in my prayers . Mrs. Kuchler

    ,

  2. AJ, we are thinking about you, praying for you and cheering you on from Denver, CO. John, Jill, Sophia, and Gabrielle

  3. AJ you are iin our thoughts and prayers! We are praying for a complete mircale. Much grace and strength to Sarah and your family as you fight this “villian”. Much love, Roseanna and Kerry (from Ivy League)

  4. We know Aaron has a long journey ahead of him, but we know he will be brave and strong all the way. Our thoughts and prayers are with him and you.

  5. Aj, keep up the good work fighting that cancer villain……Sarah, keep your head up for your little man and know that he will beat cancer’s butt….he is a strong little dude and will come out the winner. I can’t imagine what you are going through…… But the Leroy family has you and AJ on your side!!!!

  6. Hey Aaron keep your head up we are all praying for you and hope you get well really soon. From summer Simpson and family

  7. Aj you are a brave little boy. Keep up the good fight. We are on
    your team. XXOO
    Lots of love,
    The Colasonno family from OLL school.

  8. Aaron, you are an amazing boy.. I pray for you and think about you often. You are very special. Love, Mrs D (Your school nurse)

  9. Our thoughts and prayers are with you Aaron and your family.

    God bless
    The Aviles Family from Our Lady of Lourdes

  10. Aaron, keep fighting buddy. We’re all thinking and praying for you. You’re the strongest superhero at OLL! Show ‘em what you’ve got. (D’Antona Family from school) xoxo

  11. Keep up the fight Little Super Hero! We are praying for you everyday! Your OLL family is sending positive energy your way… May God keep you strong and be at your side to battle your villain!! Special prayers to your family as well that they may find faith to keep strong! OLL ~ Giovanna Ponte and Family

  12. I pray for you everyday Aaron! I miss you and I can’t wait for you to come back to school! Your friend, Steven Petrone from Kindergarten

  13. Hi Aaron, I miss you, Hope to see you soon, I watched your surfing video. You looked so cool!
    Mrs.Messmer

  14. My wife and kids and I have been praying for AJ. Your cousin Laurie told us about him. My mother in law is too. Our hearts go out to you. Praying that God will comfort you.

  15. Thinking of you and praying for you everyday… we have never met but I have heard all about you for a long time from Samantha (Miss Sam).. Amazing lil boy..xoxo

  16. Thinking of you and your family. Stay strong and positive!! Our family prays for you and your family. God Bless You! The Barone Family-OLL

  17. Hi Aaron, All the kids and teachers here in schol at OLL are praying and cheering out loud for you!!! You know how much noise THAT can be!! We know you’re our super hero and will beat this! Love Mrs. Krol

  18. Hey Sarah, you probably don’t remember me but I remember you and your sister. I lived on Wells Drive and we had the same bus stop. You’re such a great Mother and I’m very sorry about your son. I myself have a 4 year old daughter and I can’t imagine what you’re going through. I will be giving a donation on your fund me page. You and your family will be in my prayers. God bless <3

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